WHOEVER SAVES A LIFE, SAVES THE WORLD.

THE DISEASE NOMA

Noma is a bacterial disease, which affects almost exclusively malnourished children in developing countries. It begins usually in the cheek’s mucous membrane with ulcers and destroys the affected tissue. From there, noma also takes over deeper tissue layers such as muscles and bones and spreads across the entire face. This impairs all bodily functions, such as eating, speaking, smelling, seeing and hearing. Improving living conditions in developing countries would be the most effective cure, since noma spreads when malnutrition and bad hygiene occurs. Early on, it can be treated with antibiotics. Later, operations are necessary to correct disfigurements and other consequences such as the locking of the jaws.

The word “noma“ comes from the Greek word “nome,” which literally translates to “pasture.” Here it can be translated as “gnawing ulcer.” Before the discovery of antibiotics, Europeans got sick with noma as well. The disease spread in the Nazi concentration camps. Many survivors, who suffered from noma, are still too embarrassed to talk about it. One man, who had noma as a three-year-old, contacted the Hilfsaktion. He has no visible disfigurements; the affected mucous membrane was scraped off. Today most noma patients are less than six years old. Adults rarely fall ill, but some pregnant women, who have a weak immune system during pregnancy, do – as do people with weakened immune systems, for example following an infection with HIV. Since children’s diseases such as mumps and measles cause noma, small children are mainly endangered. After they turn six, their own immune systems build up and prevent noma.

Reliable data on the frequency of noma do not exist. The World Health Organization estimates that between 80,000 and 90,000 children die from the disease every year. About 10,000 survive Noma with devastating consequences. In a developing country like Nigeria, there are 14 Noma patients for every 100,000 inhabitants. Survivors are extremely disfigured and often banned from society.

EVERYONE CAN MAKE A DIFFERENCE

NANI

NOMA: PAST, PRESENCE & FUTURE

HISTORY & PREVALENCE

EVERY YEAR, 90.000 DIE FROM NOMA.

FOUR PHASES OF NOMA

PHASE 1

The immune system of noma patients is usually weakened because of malnutrition or infectious diseases such as measles, malaria, German measles and meningitis. Bacteria can settle in the mucous membranes of the mouth and nose and cause infections. At this point, the disease can be treated with mouth washes and antibiotics. Although noma is a bacterial infection, no cases of contagion are known. Intensive saliva exchange between two people is needed for the bacteria to multiply. All 400 cases that have been examined so far have been isolated instances of the disease. Examinations will increase in the future in order to compile statistical data.

PHASE 2

During the second phase, red to purple, hard knots develop in the affected areas. The infection spreads to other soft tissue, such as lips and cheeks. The affected tissue gets swollen, the patients suffers from high fever, strong pain, puss and foul mouth odor. Intervention is crucial, since noma can still be stopped at this stage. Therefore, one of the Hilfsaktion’s focuses is to sensitize parents, nurses, traditional healers and schools so that they can spot the early signs of noma. The affected children can then be brought to our treatment centre at National Hospital Abuja. Here they are examined and treated.

PHASE 3

Especially small children refuse nutrition because of pain once they get sick. Many starve. But even at this point, noma could still be controlled with antibiotics, improved nutrition and vitamins. Very few families in developing countries know the telltale signs of the disease. The necessary medication is usually not available, either. Reaching a nursing station also takes too long. Parents have to carry their children through extreme heat in the desert to get to the stations. The third phase of the disease in most cases is not prevented as a result. The disturbed blood supply causes the affected tissue to fall off the facial bones. The bone itself dissolves in many cases. A black discoloring in the face is visible for the next two to three days.

PHASE 4

After about a week, the affected tissue dies and falls off during the fourth and final phase of the disease. The body’s attempts to heal the open wounds by developing scars often cause the jaws to lock. Eating becomes extremely complicated or impossible and many children starve during this phase. They cannot take in enough food by themselves or are not allowed to eat with others because of their disfigurements. Locked jaws are also dangerous because children can suffocate on their own vomit as a result. Only operations can help at this stage. Even if no visible damage exists, the bones inside the mouth begin to disintegrate and damage muscles. At first, the locked jaws have to be opened again – an extremely difficult operation because of the closed mouth. Bone transplants are necessary in most cases. At the same time, tissue has to be transplanted as well to cover up damages in the face. Such operations can last for more than 10 hours.
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